PH1 OF A KIND

PH1 of a Kind^™ is a video series for kids (and their caregivers, friends, and communities) about living with primary hyperoxaluria type 1 (PH1).

Isabelle’s Story: Learning About PH1

Watch as Isabelle from the U.S. and her elementary school classmates learn about how the kidneys and liver work
and Isabelle shares what it’s like to live with PH1.

Luuk's Story: Learning to Stay Positive

Watch as Luuk and older brother Sem from the Netherlands talk about life with PH1, while Sem helps Luuk understand why he is not alone and should feel hopeful.

Asha’s Story: Learning About Doctors’ Visits

Watch as Asha from Egypt learns about why frequent doctors' visits are necessary when you have PH1 and comes to understand how they're part of helping keep her as strong and healthy as possible.

Will’s Story: Learning to Have Confidence

Watch as Will from Australia is encouraged by his best friend Oliver to be confident and tell others about his PH1, and they come to realize that in most ways, Will is just like them.

Now you can color with your favorite PH1 of a Kind characters!

Download coloring pages for your favorite PH1 of a Kind characters by clicking on their pictures below.

Isabelle

Luuk

Asha

Will

ABOUT THE SERIES

PH1 of a Kind is a 4-part video series starring Isabelle, Luuk, Asha, and Will* — kids from around the world who have been diagnosed with PH1. Having this rare genetic disease means that some of their daily experiences are different from that of other kids, but PH1 doesn't define them — they’re special because of who they are.

Not familiar with PH1? Click here to learn more.

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BEHIND THE SCENES

A lot of work goes into creating an animated series. These photos give you a look into the process and a sneak peek at what’s to come. Check back frequently for new photos.

Asha waiting in doctor's office with old woman

Sketches of different poses for Isabelle

Digital sketches in progress of the characters

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ABOUT PH1

Primary hyperoxaluria type 1 (PH1) is a rare inherited disease of the liver in which overproduction of oxalate results in deposition of calcium oxalate crystals in the kidneys and urinary tract and can lead to the formation of recurrent kidney stones, progressive decline in kidney function, and multiorgan damage, when the disease advances.

Click here to learn more about PH1.

PH1 of a Kind is being developed by Alnylam Pharmaceuticals in partnership with the Oxalosis & Hyperoxaluria Foundation. To learn more about each organization and their work with PH1, click on the logos below.

*The characters featured in PH1 of a Kind are fictional. Any resemblance to actual people is purely coincidental.